Showing posts with label sensory integration dysfunction. Show all posts
Showing posts with label sensory integration dysfunction. Show all posts

Wednesday, November 23, 2011

The Unhappiest Place on Earth and Other Vacation Tales

Curlytop is NOT down with Disney.
For children with Sensory Processing Disorder (SPD), Disneyland may not be the carefree wonderland promoters would have parents believe. In fact, for some SPD kids, it may be something closer to one giant house of horrors.

We weren’t thinking about that when we forked over a month’s worth of grocery money at the hallowed gates of the theme park. We were thinking about the memories we were creating with our children.

Memories, indeed.

I’ll never forget Curlytop and Snugglebug screaming in terror at the sweet face of the wooden puppet who came to life during a gently ambling journey through a darkened ride which featured a blissfully beautiful good fairy and a kindly old man. Snugglebug reviewed the Pinocchio ride with carefully-crafted restraint. “It was scary, and I hated it.”

Next up was a ride so sweet and mild, adults dread it and children adore it. After all, it really is a small, small world, and if the syrupy song doesn’t give you a toothache, the angelic faces of children from around the globe certainly will.

Unfortunately, our mid-November visit meant the ride was outfitted for Christmas, and played not only that most-dreaded song but a Christmas carol in alternating blasts—and sometimes in tandem. The usually charming children were all but hidden behind blinking, glimmering, aggressively-featured holiday decorations. Add all that visual and audio busyness to chilling blasts of air to simulate snowfall, and it’s the perfect recipe for SPD meltdowns.

Oh, yes. We were “that family” on the Small World ride. The family with the shrieking kid who just won’t shut up? That’s us.

I got Curlytop to agree to board a carousel—on the condition that we’d sit on a bench, not a moving horse—only to have her burst into tears as the music started, resulting in an emergency disembarkation.

The crowds, smells, larger-than-life cartoon characters, noise, lights and general chaos of Disneyland must have felt like the equivalent of a straight-to-video horror flick for my girls. I’m ashamed to say I drank the Disney kool-aid, and never considered my children would be anything but thrilled to see Mickey’s stomping grounds.

The next day of our vacation was exceptional, by comparison. We hit Knott’s Berry Farm, with its old-school, carnival-type rides and games. The park lacks the hologram-filled adventure rides of Disneyland, but Curlytop and Snugglebug loved “driving” race cars and semi-trucks around a tiny track without sensory assault, and were perfectly content to hang at Camp Snoopy for hours.




Plus? It’s half the price of Disneyland.

While the little girls played with Mr. Wright, the older girls and I embarked on a quest to ride every rollercoaster in the park. While Princess loves a good ‘coaster, she’s a bit more selective than the rest of us—no vertical drops, and no rocket launches.

That put her on snack patrol with Curlytop and Snugglebug, while Mr. Wright begrudgingly agreed to be my seatmate while Pepper rode with GirlWonder on the Xcelerator—a ‘coaster which starts like a pinball machine, pulling the car back, then launching it at 82 miles per hour in 2.3 seconds to a height of 205 feet, then drops essentially straight down before hitting two overbanked turns and gliding to a stop. To top it off, it’s pink. It looks for all the world like the Barbie Dream ‘Coaster—not an encouraging thought.
Xcelerator at dusk.

It was amazing, and no one soiled their pants.

The coup de grĂ¢ce was the notorious GhostRider wooden rollercoaster, which my fellow junkies and I waited two hours in line to board, due to a sudden cloudburst. Apparently, the ride can’t be run in the rain and, while we love a good shot of adrenaline, we’re more than happy to leave such judgments to the professionals. We’d like to stay on the track, and make it to the end in one piece, thank you very much.

It was dark by the time we finally boarded our car. Riding the rails in the dark made the experience even more exhilarating, and sealed our status as Knott’s devotees.

The drive back home to Washington featured a near-brawl in a supermarket parking lot, a highway flooded with spilled port-a-potties, sing-a-longs to Fleetwood Mac, carsickness, drive-thrus, and 1,100 miles of memories I wouldn’t trade for a month of Disney.

Eat your heart out, Mickey… The happiest place on earth is where is my family is.


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Wednesday, September 28, 2011

Seven Reasons I Need a Clone

July 5, 1996 marked the birth of the first mammal to be cloned from an adult somatic cell. She was a sheep, cloned by scientists at Roslin Institute near Edinburgh, Scotland, and named “Dolly.” The cloned donor cell was taken from a mammary gland, and, as one of the scientists explained, “Dolly is derived from a mammary gland cell and we couldn’t think of a more impressive pair of glands than Dolly Parton’s.”

Which just goes to show, I suppose, that you can lead a man to science, but you can’t evolve his thinking.

I remember having serious concerns about the project, wondering if the cloning of humans could be far behind. I tend to agree with bioethicist Leon Kass, who opined back in the 1960s that “the programmed reproduction of man will, in fact, dehumanize him.”

Still, there are times I wish I had a double to fill in or give a little help during my busiest moments. Ethics aside, I can’t deny the allure of being able to be two places at once, or getting twice as much work done in my limited time, or perhaps training a clone to do the chores I detest the most. For example:

1. Parent-Teacher Conferences: While we only have five kids at home now, those twice-yearly conferences add up. In the past, we’ve tried the “divide and conquer” technique, scheduling conferences at the same time and sending Mr. Wright to one, while I attended another. The problem is, I’m too much of detail-oriented gal to accept “fine” as an answer when I ask how Mr. Wright’s conference went. Details, man! I need details!

2. Sports Season: Has it ever occurred to athletic directors and administrators that having a house full of ambitious children is particularly straining on parents? Having soccer, football and junior high volleyball seasons occur concurrently has certainly made our calendar full, and try as we might, we can’t attend every single game or match.

3. Work-at-Home Mom; Stay-at-Home Kid: I know I’m asking a lot for Snugglebug to happily entertain herself with educational materials while I work on a deadline, but if she’d just stop trying to climb the six-foot fence to get into the pool, I’d get a lot more done. This is where I ask for my clone to have a Mary Poppins gene or two inserted.

4. The 6:15 A.M. Alarm: I’m a night owl by nature, and that alarm does little but tick me off and make me want to throw things—namely, the alarm clock. If I could program my clone to do the morning kids-to-school bustle, I could sleep in, making me a grateful, cheerful mama instead of a cranky, sleepwalking beast.

5. An Extra Lap: When you have kids with Sensory Processing Disorder, you double as a jungle gym. Those sensory-seeking kids need constant touch, and they always seem to be climbing, sprawling, or rubbing on you. Such is my life with Curlytop and Snugglebug, and all too often, fights over who gets to sit on Mama break out. Imagine two mamas, with two laps!

6. Aviation Advocate: Somewhere along the way, I developed an unrealistic fear of flying. A few times a year, Mr. Wright gives me a sedative and pours me into a too-small seat on some enormous aircraft to fly to some wonderful place to attend some important event on his blessed arm. Once my clone arrives, I’ll be sending her. I’ll even spring for first-class seats, if it means I don’t have to get on an airplane.

7. Church Versus Deadline: Due to an illness I’m sure my clone would have been immune to, I had to ask for an extended deadline this week. Now, instead of attending church with my family, I’m eking out this column—and Mr. Wright didn’t spare me his look and oration of disapproval.

I’m convinced… bring in the clones!

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Tuesday, December 22, 2009

Toddler Fashion

This morning, Snugglebug brought me my old beaded headband. "I gon' wear this, okay, Mom?" she informed me.

"Well, sure," I answered, excited that she was interested in the headband. "I think that's a great idea. Put it on!"

Snugglebug's sensory integration dysfunction manifests itself in different ways at different times, but some of her preferences are consistent. For example, before she even gets both feet over the threshold of the front door, my little darling strips off every last stitch of clothing when she gets home. She understands that she needs to wear clothing in public, but it's really uncomfortable for her, and she throws her clothes off the second she's inside the house.

One of the most severe aversions she has is anything (hairbrush, barrette, rubber band) touching her hair. So, it was with great delight that I encouraged her to put on the headband. Progress! I thought. This is a huge thing.

Well, um...




It turns out I've been wearing it wrong, all this time!