Showing posts with label be the match. Show all posts
Showing posts with label be the match. Show all posts

Thursday, June 19, 2014

My Brother: Kicking Cancer's Butt for Eighteen Years! (UPDATED)

This post is revived from five years ago. I decided it was time to share our story, again.

There we are... ages three and one. Aren't we cute?

Eighteen years ago, my brother, "Bubba," was diagnosed with erythroleukemia. He was 17 years old.

Erythroleukemia is a rare type of leukemia that accounts for only 3-5% of new acute myelogenous leukemia (AML) cases. It differs from most forms of leukemia in that it affects the red blood cells, rather than the white.

Although we were different blood types (he was O+ and I was A+), testing showed that our chromosomal match was close enough for me to donate bone marrow for my brother.

You may have heard that donating bone marrow is a painful process. I won't lie. You heard right.

When I came out of my general anesthesia-induced sleep, I felt like the victim of a blanket party. My hipbones were literally black and blue from the pressure exerted upon them to withdraw the marrow.

I'm not sharing these details to make me look like a hero.

The real hero was several floors above me, receiving 850 ccs of my bone marrow through a Hickman line. (He was so hip he had a "triple Hick," with three tubes, so he could get the orange Kool-aid colored chemo mix, a blood cocktail and a beer, all at the same time.)

On the pain scale, I rank donating bone marrow with giving birth. It's the kind of pain that I never thought twice about because the result was so valuable. Sure, it may be uncomfortable for a few days or even a few weeks... but what would you sacrifice to possibly save a life?

My brother's blood type is now the same as mine (A+). Our blood DNA is the same. If you placed blood samples from each of us side-by-side and examined the DNA structure, they would be identical.

I've had eighteen more years with my brother because I was a viable match for a life-saving bone marrow transplant. He truly is my hero, and I love him more than I can say.

Would you do the same for someone who needed a bone marrow transplant? Would you be more inclined to do so if it didn't cost you anything?

Be the Match Registry (formerly known as the National Marrow Donation Program (NMDP) Registry) provides marrow typing and registry, which can match you with a recipient to potentially save a life. The online registration process consists of a few basic questions. Once you apply, the Registry will send you a cheek swab kit to complete and send back for typing so that you may be added to the Registry and matched with potential recipients.

Please, consider registering. You may save a life... I did.

If you'd prefer not to register or are unable to because of medical conditions that prohibit your registration, please consider making a donation to the Registry. It costs about $100 to add an individual to the registry, and the program ends up providing about half the cost. Contributions are necessary to grow the Registry and find matches for those needing life-saving bone marrow transplants.

My brother is my hero. Will you be someone's hero?

Please comment to let me know when you join. Time is running out for some recipients. I'd love to celebrate your decision with you!

If you have the ability, please share this post on your own blog or social media account (click on "Share This" below this post) or email the link to your contacts. Let's see how many people we can get to register in the next 60 days!

I'll leave you with my favorite photo of my brother and me, taken in 2000 - four years post-transplant:




UPDATE! UPDATE! UPDATE!

See the comments section for news on how people are helping. Please pass on any action you take or hear of so that I may add it! Thank you!







Wednesday, September 1, 2010

The Gonzo Mama Be the Match Fundraiser

GIGGLE FOR A CAUSE!

If you're new here, you may not know how passionate I am about supporting Be The Match National Marrow Donor Program. You may not know just why I care so, so much. Go ahead - go read. I'll wait.

Finished? Good. Moving on...

Even if you don't know anyone in need of a bone marrow transplant, you can still help Be The Match match potential donors to recipients in need by joining the registry or contributing in another way.





Did you know it costs about $100 to test cell samples and enter a potential donor into the registry?

That's why I'm donating $2.00 of my royalty from every eStore sale of Everything I Need to Know About Motherhood I Learned from Animal House during the month of September to Be The Match.


If we can help just ONE person join the registry, that individual may be the next one to save a life. Will you help? You'll get a really funny book in return, and the honor of helping to save lives.

Please, use the "ShareThis" feature below to share this post with your friends and family by email, Twitter, Facebook, or other means. If you're a blogger, please feel free to link to this entry.

Also, if you have a bone marrow or stem cell transplant story to tell, please share it with me, and I'll feature it here during the month to help others see why donation is so important!





Let's raise some money for Be The Match, and help save lives!

Note: Be The Match has no interest in and is in no way affiliated with The Gonzo Mama, Gonzo Mama Ink, Gonzo Parenting Zine, Everything I Need to Know About Motherhood I Learned from Animal House or Wright Consulting. This is an independently-crafted fundraiser, without coordination with Be The Match.